Helpful Heart Transplant Websites

These organizations listed here may be able to provide patient education and patient advocacy services.  This is a partial listing and should not be interpreted as a comprehensive list or an endorsement of the service by Cedars-Sinai Medical Center.

 


 

Heart Transplant
  • American Heart Association
    7272 Greenville Ave.
    Dallas, TX 75231-4596
    Contact: Dudley H. Hafner, Executive Vice President,
    Phone: (214) 373-6300, Fax: (214) 373-9818
    www.amhrt.org
  • International Society for Heart and Lung Transplantation (ISHLT)
    14673 Midway Road Suite 200
    Addison, Texas 75001
    Contact: Amanda Rowe, Executive Director,
    Phone: (972) 490-9495, Fax: (972) 490-9499
    www.ishlt.org
Financial Assistance
  • National Transplant Assistance Fund
    150 N. Radnor Chester Rd. Suite F-120
    Radnor, PA 19087
    Phone: 800-642-8399
    www.transplantfund.org
Organ Procurement 
  • Association of Organ Procurement Organizations
    1364 Beverly Road Suite 100
    McLean, VA 22101
    Contact: Daniel Whiteside, DDS, Executive Director
    Phone: (703) 556-4242, Fax: (703) 556-4852
    www.aopo.org
  • American Organ Transplant Association
    21175 Tomball Parkway #194
    Houston, TX 77070
    Contact: Ellen Gordon Woodall, Executive Director
    Phone: (713) 344-2402, Fax: (713) 344-9420
    www.aotaonline.org
  • Children's Organ Transplant Association, Inc. (COTA)
    2501 COTA Dr.
    Bloomington, IN 47403
    Contact:David Speicher, Executive Director
    Phone: (812) 336-8872, Fax: (812) 336-8885
    www.cota.org
  • Coalition on Donation
    P.O. Box 13770
    1100 Boulders Parkway, Ste. 500
    Richmond, VA 23225-8770
    Contact: David Fleming, Executive Director
    Phone: (804) 782-4920, Fax: (804) 782-4643
    www.shareyourlife.org
  • One Legacy
    (800) 786-4077
    www.onelegacy.org
  • The Living Bank
    P.O. Box 6725
    Houston, TX 77265-6725
    Contact: Dorothy Mahon, President & CEO
    Phone: (800) 528-2971, Fax: (713) 961-0979
    www.livingbank.org
  • National Minority Organ and Tissue Transplant Education Program (MOTTEP)
    Ambulatory Care Center
    2041 Georgia Ave., NW, Ste. 3100
    Washington, DC 20060
    Contact: Katherine Woods Erwin, MD, Executive Director
    Phone: (202) 865-4888, Fax: (202) 865-4880
    www.nationalmottep.org
  • The Partnership for Organ Donation
    2 Oliver St.
    Boston, MA 02109-4901
    Phone: (617) 482-5746, Fax: (617) 482-5748
    www.transweb.org
  • United Network for Organ Sharing
    700 North 4th Street
    Richmond, Virginia 23219
    Phone:  (804) 782-4800, Fax: (804) 782-4817
    www.unos.org
General Organ Transplant Information
  • American Association of Kidney Patients
    100 S. Ashley Dr., Ste. 280
    Tampa, FL 33602
    Contact: Kris Robinson, Executive Director
    Phone: (813) 223-7099, (800) 749-2257, Fax: (813) 223-0001
    www.aakp.org
  • American Association for the Study of Liver Diseases
    1729 King Street Suite 200
    Alexandria, VA 22314
    Contact: Susan Nelson, Account Executive
    Phone: (703) 299-9766, Fax: (703) 299-9622
    www.aasld.org
  • American Liver Foundation
    75 Maiden Lane
    New York, New York 10038
    Contact: Alan P. Brownstein, President & CEO
    Phone: (212) 668-1000, (800) 465-4837, Fax: (212) 482-8179
    www.liverfoundation.org
  • American Society of Nephrology
    1200 19th Street, N.W., Ste. 300
    Washington, DC 20036-2422
    Contact: Sherri A. Mara, Executive Director
    Phone: (202) 857-1190, Fax: (202) 223-4579
    www.asn-online.com
  • American Thoracic Society
    1200 North Fairfax Suite 200
    New York, NY 10006
    Contact: Marilyn Hansen, Executive Director
    Phone: (212) 315-8600, Fax: (212) 315-6498
    www.thoracic.org
  • American Urological Association
    1000 Corporate Boulevard
    Linthicum, MD 21090
    Contact: G. James Gallagher, Executive Director
    Phone: (410) 689-3700, Fax: (410) 689-3800
    www.auanet.org
  • Center for Liver Diseases
    1500 NW 12th Ave., Ste. 1101
    Miami, FL 33136
    Contact: Eugene Schiff, MD, Director
    Phone: (305) 243-2325
  • Children's Liver Association for Support Services
    27023 Mc Bean Parkway #126
    Valencia, CA 91355
    Phone: (877) 679-8256
    www.classkids.org
  • National Kidney Foundation
    30 E. 33rd St.
    New York, NY 10016
    Contact: John Davis, Executive Director
    Phone: (212) 889-2210, Fax: (212) 779-0068
    www.kidney.org
  • Second Wind Lung Transplant Association, Inc.
    3440 Halliday Ave
    St. Louis, MO 63118
    Phone: (888) 855-9463
    www.2ndwind.org
  • The Kidney Transplant Patient Partnering Program
    An educational service of Roche Laboratories Inc.
    Phone: (800) 893-1995
  • Transplant Recipients International Organization, Incorporated (TRIO)
    2100 M St. NW #170-353
    Washington, DC 20037-1233
    Phone: (202) 293-0980, (800) 874-6386, Fax: (202) 293-0973
    www.trioweb.org
Related Health Conditions
  • American Diabetes Association
    1701 North Beauregard
    Alexandria, VA 22311
    Contact: John H. Graham IV, Chief Executive Officer
    Phone: (703) 549-1500, Fax: (703) 836-7439
    www.diabetes.org
  • American Society for Histocompatibility & Immunogenetics
    15000 Commerce Parkway Suite C
    Mt. Laurel, NJ 08054
    Contact: Debbie J. Elder, Executive Director
    Phone: (856) 642-2406, Fax: (856) 439-0525
    www.ashi-hla.org
  • Forum of ESRD Networks
    1527 Huguenot Rd.
    Midlothian, VA 23113
    Contact: Denise Daly, Administrator
    Phone: (804) 794-2586, Fax: (804) 378-7351
    www.esrdnetworks.org
  • Hepatitis Foundation International
    504 Blick Drive
    Silver Spring, MD 20904
    Contact: Thelma King Thiel, Chairman and CEO
    Phone: (301) 622-4200, Fax: (301) 622-4702
    www.hepfi.org
  • Juvenile Diabetes Research Foundation International
    120 Wall Street, 19th Floor
    New York, NY 10005
    Contact: James E. Mulvihill, D.M.D., CEO and President
    Phone: (212) 785-9500, (800) 533-2873, Fax: (212) 785-9595
    www.jdrf.org
Additional Resources
  • American Medical Association
    515 N. State St.
    Chicago, IL 60610
    Contact: Reed V. Tuckson, MD, Group Vice-President
    Phone: (312) 464-5000, Fax: (312) 464-4184
    www.ama-assn.org
  • Association for Multicultural Affairs in Transplantation
    Formerly ASHMTP - American Society of Minority Health and Transplant Professionals
    700 N. 4th Street
    Richmond VA 23219
    877-742-2630
    www.amat1.org
  • American Society of Transplant Physicians
    National Office
    15000 Commerce Parkway Suite C
    Mt. Laurel, NJ 08054
    Contact: Susan J. Nelson, Executive Director
    Phone: (856) 439-9986, Fax: (856) 439-9982
    www.a-s-t.org
  • American Society of Transplant Surgeons
    2000 L Street, NW, Ste. 200
    Washington, DC 20036
    Contact: Katrina Crist, Executive Director
    Phone: (202) 416-1858, Fax: (202) 416-1744
    www.asts.org
  • International Transplant Nurses Society
    1739 East Carson Street Box 351
    Pittsburgh, PA 15203
    Contact: Nancy Stitt, Executive Director
    Phone: (412) 343-4867, Fax: (412) 928-4951
    www.itns.org
  • Joint Commission on the Accreditation of Healthcare Organizations
    1 Renaissance Blvd.
    Oak Brook Terrace, IL 60181
    Contact: Dennis O'Leary, MD, President
    Phone: (630) 792-5000
    www.jointcomission.org
  • North American Transplant Coordinators Organization (NATCO)
    P.O. Box 15384
    Lenexa, KS 66285-5384
    Contact: Deidre Panjada, Executive Director
    Phone: (913) 492-3600, Fax: (913) 541-0156
    www.natco1.org